April 20, 2022

Ki Community Update: Vol. 5, Issue 1 – April 2022

We’re excited to share this newsletter with data contributors, grantees, partners, and others in the global Ki community. In every edition, we’ll tell you about recent news and events and provide a new installment in our Insight Stories series, updates from Ki Grand Challenges, and information on new datasets in our repository.

KI INSIGHT STORY – FORMULATING IMPACTFUL RESEARCH QUESTIONS

Ki Insight Stories are an opportunity for us to thank the Ki Community for your generous data contributions and keep you informed on the important insights that Ki and our BMGF partners are generating.

Our latest Insight Story shares the Ki approach to formulating impactful research questions and examples of the ways we are implementing this approach. Our goal is to break a broad topic into a more approachable set of narrow questions and arrive at focused, impactful answers. Successful research question formulation makes our findings more relevant to stakeholder priorities, enabling better data- and information-driven decisions.

We deeply appreciate the hard work and involvement of all our data contributors, domain experts, and partners in research question development for every project. Without you, this work would not be possible.

We invite you to download the full Insight story by joining the Ki Insight Stories space on Synapse, a collaborative research platform.

TO DOWNLOAD KI INSIGHT STORIES ON SYNAPSE

  1. Log in or register for a Synapse account: https://www.synapse.org
  2. Access the Ki Insight Stories folder, located within the KiData_PlatformServices folder: https://www.synapse.org/#!Synapse:syn21237104

Please note that if you are a first-time user of Synapse you will be asked to register and complete a quick certification quiz before your access is complete. This is because Synapse can contain sensitive information, so certification is required.

KI GRAND CHALLENGES WEBINAR: HEALTH DATA CAPTURE AND QUALITY ISSUES

On March 15, 2022, Puja Kawle, the Senior Team Lead of the Ki Cytel team, presented a Ki Grand Challenges webinar titled “Health Care Data Capture and Quality Issues”. In the webinar, she discussed several topics surrounding health care data, including:

  • The health care study process,
  • How health care data is captured and stored,
  • Challenges and considerations for data sharing and personal identifying information,
  • Good data curation practices, and
  • Identifying and handling data quality issues including outliers, duplicates, missing values, etc.

She also presented examples of real problems and solutions in health care data capture, storage, sharing, and quality.

If you missed this interesting webinar and lively audience question and answer session, a recording is available to download on Synapse. If you have a Synapse account, you can view or download the presentation at https://www.synapse.org/#!Synapse:syn17094298

UPDATE ON DATA SETS

Thanks to you, Ki’s repository is ever-expanding. Please find below a list of studies that have completed QC since the last announcement.

ICDDR-B-SAM, Bangladesh
A study of children experiencing severe acute malnutrition (SAM).

LSHTM-Gambia, Gambia
Mid-Upper Arm Circumference as an independent measure for recovery and discharge of Gambian infants in severe acute malnutrition treatment programs.

MITCH, India and Thailand
Effect of iodine supplementation in pregnant women on child neurodevelopment: a randomised, double-blind, placebo-controlled trial.

OPML-Sokoto, Nigeria
Incidence of severe acute malnutrition after treatment: A prospective matched cohort study in Sokoto, Nigeria.

SAS-SAMIND, India
Efficacy of three feeding regimens for home-based management of children with uncomplicated severe acute malnutrition: a randomised trial in India.

RESOURCES